The MS Chronicles: When Taking It Easy Isn’t an Option

It’s been pretty quiet (well…..actually silent) over here at the blog for the past week or so.   Last Monday, my oldest daughter got the flu and my younger one got some kind of respiratory infection and a REALLY impressive case of pinkeye.  On Tuesday, I got sick.  Bless my sweet husband who babysat all three of us and for some understanding principals and teachers since we were all pretty much home for most of the week.

And then on Saturday…..

MY BABY SISTER GOT MARRIED!

Melissa got engaged back in the fall to a surgical resident at a local hospital who is originally from Cairo, Egypt.  They had a beautiful Coptic Christian Orthodox wedding on Saturday afternoon.  Thankfully, we had all recovered (for the most part) from the flu and our other various ailments.

As I was resting on Sunday (i.e. while I stayed on the couch or bed ALL DAY LONG), I thought about how my multiple sclerosis had dictated so much of my week.

95% of the time I’ll take it easy before participating in a stressful or demanding activity, I’ll figure out a way to change or modify it for me, or I’ll just not participate.

Well, sometimes there are things in life that just aren’t optional. 

My sister’s wedding is a once in a lifetime event.  I was the matron of honor and mother to the two most excited flower girls on the planet.  This was big.

But I also recognized that I’d have to work in time to recover because I knew it’d be a long couple of days.

What I wasn’t counting on was everyone in my house getting sick the week before.

The truth is that sometimes you just need to push through the pain and fatigue.

And this past week has been one of those times.  But now it’s Monday afternoon and with the exception of losing my voice and being a fairly tired, I’m back at work and good to go.

So how did that happen?

1. I had a plan.  

Before everybody got sick, I knew that the wedding weekend would be long and tiring.  I’ve had MS for ten years.  The fatigue and pain after overdoing it rarely comes as a surprise anymore.

Weeks before the wedding, I had found a replacement for my Sunday morning responsibilities at church and had planned on going to a later service.  When everyone got sick and then the wedding events started, I realized I wouldn’t be able to attend church at all and made the necessary arrangements.  Had I not had a plan in place and anticipated what problems I would experience after a busy weekend, I would have been caught by surprise and it would have made everything much worse for not only me but also my husband, kids, and the people who depend on me in church.

2. I made sure I made good use of my primary care doctor.

Within a few hours of taking my kids to the pediatrician, I used my doctor’s office online system to send an email to my nurse practitioner.  I told her the symptoms I was beginning to have as well as letting her know that one of my kids had the flu and the other was also ill.  I am immune suppressed  due to my medication so I knew getting the flu would NOT be a good situation and potentially dangerous.  She started me on a preventative course of Tamiflu and let me know what symptoms to watch out for and when to get back in touch with her.  I also made sure to take my over the counter medication regularly and not get behind on fever or pain medication. And I’ll be 100% honest and say that I am NOT a good medication-taker- the fact that I even took the OTC medicine is a credit to my husband.  Also of note- he makes a really good cup of hot tea with honey. 🙂

3.  I had help. 

My husband is a trooper.  He jumped right in and handled so much of the caretaking tasks on the days I was sick as well as the recovery time.  I had a sweet friend who sent over some food and both of our parents helped us out.  We also ordered a fair amount of takeout and cooked whatever was most convenient.  (Hello Chick Fil A!)

Ya’ll…this flu. It’s not pretty.

4. I knew the fatigue and pain would only be temporary.

After 5 days of having sick kids and being sick myself, I was exhausted.  Wedding events on Friday and Saturday, while fun, were also exhausting.  But I still had an amazing time and enjoyed every minute of my only sibling’s wedding. I had a plan in place to recover so I was able to push through and really enjoy myself instead of worrying about what I was going to do the next day.

Normally, if someone asked me how to avoid the consequences of overdoing it with multiple sclerosis I’d tell them to “just say no”.  Avoid the situation that causes the fatigue, do the minimum, or find ways to modify the activity.

But life doesn’t always work that way.  Sometimes we just have to push through.  Sometimes we jump into the situation that’s going above what we can comfortably do.  In those moments, we realize the consequences and plan for them instead of running away.  Let the laundry and the cooking go and enjoy the things in life that are most important.  Like snuggling a sick kid or celebrating your sister’s wedding.   Those are things you’ll never regret!

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